Tag: fertility story

Drowning in prayers

Because there is no life without the wave. That was it. That’s all. Everything. A greatness that had engulfed her but not suffocated her in its depths, but pushed her to the surface with grace and adoration. Two working together to keep one another flowing. Their time together seemingly short but lasting a lifetime. Relying on each other for their strength and power. The hidden depths don’t frighten her and its power over her is forgotten in that brief but unending moment. Crashing her against the rocks unforgiving and endlessly painful the wave beats her. Its power once overlooked is the death of them both. She would have drowned in the idea, yet ‘the wave’ casts her aside with the other debris. The wave will keep coming back, and she playing in the surf mournfully remembers the time she had wanted to join its deafening silence, the crashing stillness. When it does come back she allows the ice cold thought to embrace her soul again before being thrown against the shore. She knows no other way than this. She could move to calmer waters but hears the call of waves breaking and knows…. only too well…. she will eventually drown in salty tears.

Photo by Dave Watson
Please check out his work on https://www.instagram.com/davewatson_uk/ or at https://davewatson1980.picfair.com

Letter to our future baby

I wish you were here.

You just need to be here in my arms. Looking up at me. Me and you. Your dad is next to you. You are just sitting. Living. Breathing in this world where we are. I feel like I know your face. I know your noises. I can feel your touch. I have seen it in my mind a million times. You’re real. There are times I feel I’m starting to lose who I am because who I am doesn’t make sense without you. You are what we hope for everyday. There’s so much love just waiting for you. Love for you from everyone. You have no idea how much you will be loved when you are here. It just seems so hard. So impossible to think of you actually being here. I don’t know how long it will take and I’m scared of it never happening. 

This road, this journey we are on, just feels like it’s never going to start. That it’s never going to end. Such a long road with its twists and turns and u-turns that I’m just not strong enough to take for much longer. I’m not even worried about an announcement or a baby shower. It’s just holding you. I think once I hold you, I’ll never let go. I’d never want to give you up. And never let you down.

I feel like I’ve let your dad down. I feel like I’ve let everyone down. There is so much love for someone I’ve not even met. Someone who isn’t even alive. You are an idea. A wish. To be a mother is something I never ever wanted before and  now that I do it’s all I think about. My life is just one big distraction. 

I feel like I’m failing as a wife. That all the joy is just a mirage. A fake smile. 

I can see you growing up. Walking around this house. I see where your crib would be. Where your toys would lay on the floor. You’d be outside, where you’d run in the sun, playing.

I see you meeting your nan and your grandad for the first time. See Christmases and Birthdays. They all play out in my mind. I see that joy on your dad’s face. Nothing else compares. I wonder if this heartache will end. There’s such a small part of me that thinks it won’t and I’m scared. If our hopes don’t magic you into life what will happen? Wanting you is like no other feeling. Ever. I’m scared of what it means if you don’t become real.

I see your face in my dreams. 

Beautiful/Crazy

There are days when your emotions run so high and low that you can barely find balance. There are days when you wake up and you don’t want to go outside. There are days when you can barely move because you’ve been so busy the day before. There are days when you have things to do and people to see and all you want to do is avoid it all because you don’t want to plaster on a fake smile because all you can do is cry.

Today was one of those days. After a mammoth drive on jubilee Thursday we found ourselves tired and facing another busy couple of days. We had family visiting and spent the morning with them and then ran errands. We then see friends to plan for June 2023. Followed by another rushed evening and preparations for a very special person’s 90th birthday.

The party for my nan was absolutely amazing with lots of memories made with children, grandchildren and great-grandchildren. I watched as my brothers and their girls sat with my dad and family and I just felt the sadness creep over me. At times so consuming I was breathless. Where was my child in those pictures? I hate it when out of nowhere those feelings arrive. It’s like one minute you cannot be happier and then the next you’re crumbling. How much longer can I keep it together? I know for a large part of it it’s due to how frantic we’ve been and how tired I’ve felt but what they are real emotions and they do come from a very real place of longing. 

I was able to distract myself by tidying up toys and bringing out the birthday cake and orchestrating the family photos but ultimately it’s all a distraction. And I wish I didn’t need that distraction. I don’t want to go through life doing these things they’re a great way of passing the time between feeling happy and feeling sad and wondering what feeling will win. Nevertheless, the look on my nan’s face as she arrived to see us all singing Happy Birthday in one big surprise, giving a little speech and seeing her birthday cake was amazing. One of the best feelings. To build that joy in someone you love so deeply can never be replicated. It’s a one of a kind triumph. 

Today we went to another family party, my cousin’s 30th. I was exhausted today, it was the 4th of 4 days that we’ve been bafflingly busy. And with more than 20 people to catch up with and talk to, it was tiring just thinking of it. So I put on a dress, wrapped up warm and wore really snuggly shoes and told myself to just sit and watch what was going on. It’s the safe option. And then we were thrust into the limelight to play giant Jenga. Why. Why. Why. It was a complete surprise and I didn’t know no how to say no. But honestly it was the best thing because we were up to play first, which meant that this tired gal got it out of the way and could sneak off to chill once more. We lost. Shucks. And then we watched other people play and attention grew and the crowd got silent, the birds sang and nobody dared breathe. You could hear a pin drop. And after the final was played and the winners had won we all sat down and laughed and talked and it didn’t feel like a chore. There was no fake laughter. No fake smiles. And no sitting in the corner. I was me again. No hiding. 

There was only one moment when the newest baby of the group was being talked to and played with, that I noticed what looked like a tear in Mr W eyes. It was then that I started to well up. I wish I could stop his longing and his pain. The best thing about this time of year is you can pass off red eyes as hay fever. After that moment the laughter and jokes were rapid fire and I found myself literally crying with tears of mirth however my body took over and the laughing tears turned to sobbing tears. I don’t know why this happens but buried beneath my jumper I was able to pass off the crying as laughing and carry on. Hiding away. I’m honestly grateful for today. It took me out of my head, I laughed with those I love so very dearly and I’m going to sit down with Mr W to relax.

Being kind to yourself is a daily challenge. There are lots of ups and downs. It’s hard to see the top when you feel so low and you daren’t look down from such highs. I will be reminding myself as much as possible that when you want something so bad it’s a hard hope to leave at home. It travels with you. The beautiful but crazy journey.  

Pcos and Me

This is a highly personal piece today. It’s a part of my life every single day. There is no ‘cure’, but there are ways of handling it to make it easier. The amount of information out there is absolutely overwhelming so if you suspect or have PCOS please don’t think I’m the oracle or that my research is all there is to know. There will also be opinions that have been built upon emotionally because of years of discrimination and sheer lack of help and awareness. I’m here to discuss my relationship with this condition and try and try to work through some of my issues of embarrassment I have when talking about it and  hopefully, also giving you the absolute promise that you are not alone.

My pcos symptoms started in my mid teens. I had my first period at age 13 and then nada. Nothing. It didn’t happen again for over 6 years. To be fair at that point, I didn’t know about the condition and I wasn’t educated enough to think there was a problem. I simply thought that periods took a while to get going. In school, our sex education lessons saw us separated into groups of boys and girls and taught the ‘important’ things about our changing bodies. The boys were led to a different classroom, where undoubtedly condoms were thrown at them and they were told to be safe. I’d like to point out here that my disdain for the ‘lesson’, yes you’ll notice the disdain with the amount of apostrophes I’m using, comes with my learnings over the years about my condition. In the girls class, we were given a magazine about what it meant to be a teenager and it came with a tampax. How about that! And that was it, nothing about being safe during sex, and absolutely no information about irregular periods. I appreciate that talking about fertility at such a young age may be inappropriate but it is an education I feel needs some major attention. Because where these conditions can cause infertility, they also come with a vast range of physical and mental health implications too. It’s also important to point out that life is not a fairytale, getting pregnant is not always easy, marrying the prince, living in the dream castle and getting pregnant on your wedding night isn’t always the case. If you’re anything like me, you’ll marry your prince after living together for four years and fall asleep on your wedding night. Romantic! As important it is to tell children the lesson of being safe during sex, because you may catch something or indeed fall pregnant, it’s so damn important to tell them that there is another range of stories. The couple that struggle with infertility. The couple that sadly had a miscarriage. The couple who had children young. And the couple who did not want children! There is not just one narrative. So this needs to be taught or at the very least discussed. 

It’s been twenty or so years since that enlightening experience, and where then I would have wondered why endometriosis or Polycystic Ovarian Syndrome, among other fertility and debilitating conditions, was important to learn about, I’m now a 34 year old woman teaching myself about it all. I suppose moving forward after this piece it would be prudent to ask some teens about the sex education they are receiving, or better yet, the teachers who have to give it. I dare say they are working from a guideline set out by some high seated council that knows best! Anger unfortunately will spill out from time to time. This is your warning. 

Daily symptoms of this condition are so surprising that at first most of them seem like a joke. However after countless medical texts, research pieces and noticing the patterns within groups of likewise women, the actual list of symptoms is enormous! When it comes to myself, I have all of them bar one or two. It’s only through my self education that I’ve found symptoms I wouldn’t have thought were out of the norm for everybody to be honest. But hey, ho, they are all part and parcel of this condition. Which in a way, makes me more accepting of the symptom as a whole. One of these for example is anxiety.

Ah the ‘A’ word. It has been brought into the glaring spotlight for the past 3-4 years and it’s creating awareness where once there was none. In my eyes, there are two forms of anxiety. There is the dread of going to a party and wondering what to wear/eat/drink, the feeling of shyness you know will creep onto your being as you are presented with a room full of people and there’s definitely nervousness such as when you read a piece of news. Covid-19 has reached the UK for instance. This type of anxiety comes and goes with the occasions that are making us anxious. It’s something everyone can feel at any time. And in most cases you live without it more than living with it.

And then there’s the other type. The complete saturation of anxiety into your whole being. The utter lack of sleep when analysing something minor. Maybe text that hasn’t been returned from a friend. Last year I had a full on meltdown because a friend hadn’t replied to my messages and I thought I had done something wrong! The heart racing and yet immobilising fear of new situations; answering the door to a stranger, talking on the phone, starting a new job. There have unfortunately been times when I’ve let the doorbell ring, or the phone go unanswered because I’m panicking on the other side. And quite surprisingly, I have avoided job interviews too. When you live with anxiety, you develop around it so fully that you don’t initially recognise it as anything, you fully believe it’s just how everyone is. Everyone at some point in their lives has surely travelled for 90minutes on the train to university only to turn around at the lecture room door because people will turn to look at you when you walk in, right? It seems when looking back, I’ve been struggling with anxiety for a long, long time. At the time it just felt like I was a nervous girl. 

Anxiety is a big symptom in the world of Pcos, how it affects people mentally is absolutely draining. Pile on the other symptoms which will make your anxiety worse and you’ve got a condition that needs more attention from the government and healthcare institutions. Some of the biggest symptoms I deal with are:

Weight gain – I’ve always been the bigger girl. At age 14 I was a size 14/16 and was very aware of it. Now I’m bigger and yes I’m still aware. In the beginning I was conscious of the fact that I had pcos because I was bigger. And in the most recent of years I have discovered that it is simply not the case. Weight gain is a symptom of PCOS not the cause. I’ve started owning the fact that my weight is partially not my fault. I’m not going to sit here and tell you I eat a lettuce leaf smoothie everyday, because I don’t. But what I do know is that exercise and the things I eat aren’t as simple as ‘get up and move, whilst digesting a tiny salad’. My body is in a constant state of fat storage behaviour because of my insulin resistant cells. My body’s cells are at war with my brain. It’s a difficult feeling to process when someone glances at your stomach and must think you are a lazy cow, when you aren’t choosing to be this way. 

Inflammation – so my body is also in a hyper alert inflamed state. So I’m more likely to suffer from IBS and stress. Apart from the physical side effects, the stress is on my cells which doesn’t help them when they’re already not functioning the way they need to be. Fun! Which is why, when I’m told to ‘relax’ I find it hard not to implode there and then. 

Hirsutism – that means hairy. I have hair growing everywhere on my body. Everyone does. But mine is thicker, darker and not bloody wanted. It makes me feel unattractive, self-conscious and it’s the hardest outward effect of this condition that I deal with. At times it stops me being loving with my husband. I feel like a man and it’s very difficult to live with. I often try to turn a situation around when you say ‘you suffer’ because more often than not, if you can find a way to come to terms with something, you can say you ‘live’ with something and in a way it stops controlling you and your quality of life. But for me, living in this hairy body is disgusting and I suffer its physical and mental effects everyday. It’s a physical reminder that I’m different. There have been a lot of times where I’m talking to someone and they’ll notice my face is different, and it’s unfortunate that I see their eyes move from my eyes to my chin. It’s not their fault, 

Infertility- I’m going to do another blog shortly on what PCOS has meant for me and my fertility journey (see journey, not struggle) because it’s just huge. Look out for it soon. But let’s just say, it’s fucking hard! Capital F!

Ance – I had horrific spots at school, I was bullied badly over this, even by ‘friends’ and at the time it was believed to be part of puberty. But I believe that as my puberty never really began properly because of the jumble of hormones my body was coping with vs the normal puberty struggles, I had spots competing in the hormone olympics. I’ll have the occasional pimple now and again, but nothing like back then. 

Hair loss – oh yes,how can I lose hair on my head if it’s everywhere else on my body. Don’t even start! My cousin first noticed some of the hair at the back of my head was shorter than the rest back in 2011. We blamed the amount of times I had bleached my hair and as it was at the back it didn’t bother me. A few years ago I started reading about hair loss and PCOS. It causes bald spots and thinning of the hair. Now my hair was so thick and curly when I was young that it regularly became knotty and matted. Nowadays, I estimate I’ve lost 50% of my hair due to thinning and the short bit at the back is still there. As a girl who suffers with her weight and facial appearance, my hair is my security blanket. Another physical reminder, that not all is as it should or indeed could be. 

Insomnia – well this one shocked me, it goes hand in hand with the theory of people living with PCOS having no energy. I’ve had insomnia since I started at secondary school. I would regularly not sleep or manage a few hours a night. Ultimately this came down to the stress I was experiencing at school but it also turns out to be a major symptom of the condition. It is said to go hand in hand with anxiety. It wasn’t until Mr W and I bought this house that I found myself sleeping better and permitting myself the time to nap if I needed it. I started listening to my body when it needed sleep. Before that I would muddle on through and had learned that being tired was just a natural thing that everyone felt. WRONG! PCOS also drains your energy from your body, so no matter if you’ve had no sleep, 3/5/10/14 hours sleep, you will, or at least I do, feel tired. The last couple of years have been better, and it’s only when I’ve had a severe anxiety attack, that I find I can’t sleep. But as I become more accustomed to what’s going on and recognising the signs, I can calmly go about my day knowing it won’t last forever. 

So there you have it, a day in the life of me! A lot of how I feel about the above is determined by my mental state. It’s my anxiety levels that will control my mental health. And a lot of the symptoms will cause me to feel anxious and my anxiousness will cause my internal symptoms to flare up and back to the beginning we go. So yes, I’m living within a vicious circle BUT somehow knowing there isn’t a cure but it can be managed makes me realise that there’s only so much I can do. 

Over the next two or three blogs I’ll be detailing my struggles with fertility, the NHS help I’ve gotten so far and the steps I’m taking to make my condition more manageable and in turn make my life just that bit better. 

I want to say now, that I have an amazing husband, beautiful friends and family, most of whom have not made me feel like a freak in any way nor stopped me talking when I’ve discovered new things about this condition. The wonderful power of research and owning your condition means you can take control and I believe that’s the first step on a very difficult and winding road. You are not alone.